Quick Summary: Two parents in Medford are doing everything they can to provide for their two beautiful boys who face a lifetime of challenges. Iris and Brett Schultz started their nonprofit organization, Hunters CMT4B3 Research Foundation, after their 4-year-old

Orlando Family Makes Progress With Son S Ultra Rare Diagnosis -

Two parents in Medford are doing everything they can to provide for their two beautiful boys who face a lifetime of challenges. Iris and Brett Schultz started their nonprofit organization, Hunters CMT4B3 Research Foundation, after their 4-year-old When Melanie took 8-year-old Mason to a routine eye appointment, she never expected to hear the words "homocystinuria.

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  • Two parents in Medford are doing everything they can to provide for their two beautiful boys who face a lifetime of challenges.
  • Iris and Brett Schultz started their nonprofit organization, Hunters CMT4B3 Research Foundation, after their 4-year-old
  • When Melanie took 8-year-old Mason to a routine eye appointment, she never expected to hear the words "homocystinuria.
  • This week on The Genetics Podcast, Patrick is joined by Terry Pirovolakis, CEO and Founder of Elpida Therapeutics.
  • Parents Candy and Wesleyon Zollicoffer are a true example of resilience.

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Orlando family makes progress with son's ultra-rare diagnosis

Orlando family makes progress with son's ultra-rare diagnosis

Read more details and related context about Orlando family makes progress with son's ultra-rare diagnosis.

Central Florida Family of boy born with rare genetic disorder searching for cure

Central Florida Family of boy born with rare genetic disorder searching for cure

Read more details and related context about Central Florida Family of boy born with rare genetic disorder searching for cure.

Florida family learns of son's rare congenital heart defect shortly after birth

Florida family learns of son's rare congenital heart defect shortly after birth

Read more details and related context about Florida family learns of son's rare congenital heart defect shortly after birth.

Parents start foundation to help sons battling rare diagnosis

Parents start foundation to help sons battling rare diagnosis

Two parents in Medford are doing everything they can to provide for their two beautiful boys who face a lifetime of challenges.

Meet HGF’s Family Days! Fun events where you can learn more about rare growth disorders. 🤝

Meet HGF’s Family Days! Fun events where you can learn more about rare growth disorders. 🤝

Read more details and related context about Meet HGF’s Family Days! Fun events where you can learn more about rare growth disorders. 🤝.

San Antonio family raises funds for baby diagnosed with ultra-rare disease

San Antonio family raises funds for baby diagnosed with ultra-rare disease

Read more details and related context about San Antonio family raises funds for baby diagnosed with ultra-rare disease.

How This Family Is Inspiring Others After Son’s Rare Diagnosis

How This Family Is Inspiring Others After Son’s Rare Diagnosis

Parents Candy and Wesleyon Zollicoffer are a true example of resilience. In 2020, their youngest

We were told there's 'no cure' for our son's rare disease, so our work is to find one l GMA

We were told there's 'no cure' for our son's rare disease, so our work is to find one l GMA

Iris and Brett Schultz started their nonprofit organization, Hunters CMT4B3 Research Foundation, after their 4-year-old

This ultra-rare metabolic disorder was MISSED at his newborn screening

This ultra-rare metabolic disorder was MISSED at his newborn screening

When Melanie took 8-year-old Mason to a routine eye appointment, she never expected to hear the words "homocystinuria.

EP 205: Building hope for children with ultra-rare diseases with Terry Pirovolakis

EP 205: Building hope for children with ultra-rare diseases with Terry Pirovolakis

This week on The Genetics Podcast, Patrick is joined by Terry Pirovolakis, CEO and Founder of Elpida Therapeutics. They discuss ...